Syringobulbia Important
It is possible that the main title of the report Syringobulbia is not the name you expected.

Disorder Subdivisions

• None

General Discussion

Syringobulbia is a neurological disorder characterized by a fluid-filled cavity (syrinx) within the spinal cord that extends to involve the brainstem (medulla). It usually occurs as a slit-like gap within the lower brainstem that may affect one or more of the cranial nerves, causing facial palsies of various kinds. In addition, sensory and motor nerve pathways may be affected by compression and/or interruption. This disorder is intimately associated with syringomyelia, in which the syrinx is limited to the spinal cord, and to the Chiari I malformation.

Resources

American Syringomyelia & Chiari Alliance Project
P.O. Box 1586
Longview, TX 75606-1586
Tel: (903)236-7079
Fax: (903)757-7456
Tel: (800)272-7282
Email: info@asap.org
Internet: http://www.asap.org

National Spinal Cord Injury Association
75-20 Astoria Blvd
Jackson Heights, NY 11370
USA
Tel: (718)803-3782
Tel: (800)962-9629
Email: info@spinalcord.org
Internet: http://www.spinalcord.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

American Spinal Injury Association
2020 Peachtree Road NW
Atlanta, GA 30309
Tel: (404)355-9772
Fax: (404)355-1826
Email: ASIA_Office@shepherd.org
Internet: http://www.asia-spinalinjury.org/

World Arnold Chiari Malformation Association
31 Newtown Woods Road
Newtown Square, PA 19073
Tel: (610)353-4737
Email: chiari-owner@yahoogroups.com
Internet: http://www.wacma.com

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Christopher S. Burton Syringomyelia Foundation, Inc.
P.O. Box 100335
Fort Lauderdale, FL 33310-0335
Tel: (954)727-5137
Fax: (954)636-2409
Email: info@thesmfoundation.org
Internet: http://www.thesmfoundation.org